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Five Questions for Kathy Hudson, Director, Genetics and Public Policy Center

Kathy Hudson is the former Assistant Director of the National Human Genome Research Institute, the 13-year effort coordinated by the federal government to map human DNA. In 2002, she founded the center, which is funded by The Pew Charitable Trusts and located at Johns Hopkins University, to focus on public policy issues raised by genetic research.

Q: What's your hope when the new law against genetic-based discrimination takes effect (1- 1 ½ years from now)?

A. My hope is that patients and prospective research participants will be able to make informed decisions about whether to participate in research or whether to have a genetic test unencumbered by concerns that their genetic test results or their participation in research could come back and bite them.

By Libby George, CQ Staff

After 18 years as a Democratic House member and then four as West Virginia's governor, ending in 2004, Wise now campaigns for better high schools as the President of a nonprofit started by Gerard and Lilo Leeds, the couple who founded the tech company CMP Media Inc. Wise warns that the nation neglects high schools at its peril, and in his new book, "Raising the Grade," he argues for more spending and attention to raising graduation rates.

Q. With Congress and the country focused on the No Child Left Behind law, which covers elementary school education, why move on to high school reform?

A. Schools are held accountable for how well they do on the tests, not whether the kids actually graduate. It's like you're running in a mile race, and assessing rigorously every 10th of a mile, but nobody counts whether you cross the finish line.

Dr. Nora Volkow is the Director of the National Institute on Drug Abuse.
NIDA recently sponsored a conference on an innovative concept called "Blending" - bringing laboratory researchers together with community-based counselors and physicians who work with drug addicts.

 


Q:  What was the problem that "Blending" is designed to solve?
 
A:  The problem that blending sought to address was actually a problem that is still prevalent in research on medicine. You can find these scientific advances and they are actually shown to have effectiveness or benefit to treating a condition, but they are not necessarily translated into practice.
    We've (created) a forum to bring together scientists and those individuals who are out there in the trenches doing the day in and day out (treatment), to increase the likelihood that there is communication on both sides.